Life transitions of adolescents and young adults with life-limiting conditions

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منابع مشابه

Patterns of diagnoses among children and young adults with life-limiting conditions: A secondary analysis of a national dataset.

BACKGROUND Numbers of children and young people with life-limiting conditions are rising, and increasing lifespans require young adults with life-limiting condition to transit to appropriate adult services. AIM To describe the prevalence of life-limiting condition in children and young adults by age, sex, diagnostic group, ethnicity and deprivation. DESIGN A secondary analysis of the Englis...

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Understanding the relationship transitions and associated end of life clinical needs of young adults with life-limiting illnesses: A triangulated longitudinal qualitative study

BACKGROUND Care of young adults with life-limiting illnesses can often be complex due to the fact that they are growing and developing within the continuing presence of their illness. There is little research conducted nationally and internationally, which has examined the life issues of young adults or taken a longitudinal approach to understand such issues over a period of time. AIM To gain...

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Pharmacological interventions for pain in children and adolescents with life-limiting conditions.

BACKGROUND Pain is one of the most common symptoms in children and young people (CYP) with life-limiting conditions (LLCs) which include a wide range of diagnoses including cancer. The current literature indicates that pain is not well managed, however the evidence base to guide clinicians is limited. There is a clear need for evidence from a systematic review to inform prescribing. OBJECTIVE...

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Short break and emergency respite care: what options for young people with life-limiting conditions?

BACKGROUND Service providers face difficult decisions about how best to develop services for the increasing numbers of young people with life-limiting conditions who require palliative care. OBJECTIVE To explore alternative short break and emergency respite care options to children's hospice care. METHODS A two-phase evaluation with young people, families and professionals. Phase 1: qualita...

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Quality of life information and trust in physicians among families of children with life-limiting conditions

PURPOSE: To examine information that parents of children with life-limiting conditions want to discuss with children's physicians to assist decision-making, and whether the desire for this information is associated with parents' trust in physicians. STUDY DESIGN: A cross-sectional study using a telephone survey. PATIENTS AND METHODS: Subjects comprised a random sample of 266 parents whose child...

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ژورنال

عنوان ژورنال: International Journal of Palliative Nursing

سال: 2016

ISSN: 1357-6321,2052-286X

DOI: 10.12968/ijpn.2016.22.12.608